Yay! Today was Day 10 of Radiation.
10 down... 30 more to go.
Day 10 and my husband's throat on the outside is red. Inside, he says it hurts and hurts bad. Swallowing is beginning to be painful and difficult. The radiation is also kicking his butt. Tired and worn out just to walk to the car.
I have read that by Day 12 it will be like entering hell.
By 3 weeks, He will feel like he has a Weber Grill inside his throat turned on to High Roast. Right now, all he has to drink is GatorAde and water. The rest I give him via his tube. I named it Franklin. "Time to feed Franklin."
I am up to giving him 6 cans a day of the Iosource liquid food. It's a breeze. I have the process down to 10 minutes per can and or feeding.
Tomorrow begins Chemotherapy.
Why has it taken this long to begin the chemo if chemo kills the cancer cells? That has been my burning question since this whole nightmare began. If radiation shrinks the tumors and chemo kills them... Why the delay.
You will never believe the reason WHY.
We have insurance out the wahazoo. 3 different polices to supplement the one before it. None of the three would approve the chemo since they had never heard of Large Cell Undifferentiated NeuroEndocrine Cancer.
Right... They think we are faking this crap or what? We needed to start chemo 2 weeks ago!
Cancer is big business. Really big business and we are just one tiny cog in the wheel of how this money making machine works. So... Until they approved it today at 4:45 we weren't able to get the treatments. Amazing and so sad.
Not that anyone wants to worry about money when your health is concerned but just for the Emends Capsules to fight nausea, those must be taken for three days and one packet of 3 capsules is $375.00 to be given once a week for the next 5 months.
$10,000.00 just to keep from puking.
Sigh, tomorrow is the big day.
Radiation treatment at 10:00 a.m. then right to the Chemo lab to sit for 6 straight hours of chemo therapy. The chemo port is in place. It has a wire that runs into the artery under the collar bone and into the main artery that leads to the heart and sits there right at the top of the heart. "Why can you not take chemo in the wrist vein?" I asked the doctor.
"Because it would shred them in 10 minutes. This Cisplatin is a tough drug. Much like Mustard Gas. It keeps cancer cells from dividing and kills the bad cells but unfortunately kills good cells as well. I just want the dirty bastards gone!
In the meantime, I had to go to the doctor myself. I REFUSE to ever go back to our family doctor because of that witch secretary and have no time to search for another family doctor so I called my Gynecologist. He ordered chest x-rays for a persistent cough. I truly believe it's all stress.
Today I laughed until I cried.
I was telling my husband as I coughed up a lung that I hope this x-ray shows nothing.
He pipes up and says "Oh Lana, I cough all the time and it's nothing to worry about. Trust me."
I peered up at him and lost it!
I am going to take medical advice from a man with a chemo port, feeding tube, tumors the size of life vests in his throat and two rare forms of cancer? Ha! I'm not sure why but I found that hysterical and most especially so since he was dead pan serious!
It was good to laugh. I thought I had forgotten how....
Speaking of stress... I now have this bewildering twitch in my left eyebrow.
OMG. I sit and talk to doctors and nurses and techs and the entire time they are explaining upcoming procedures to me, my eyebrow is twitching. Tic tic tic. It's so hard to concentrate while my eye is going all over the planet. I feel like such a dork. tic tic tic.
I wonder if they notice.
As the day it goes on it gets worse. tic tic tic..... Argggh. All day long! My eyebrow doing the booty dance. Salsa.
Have some chemo and knock it off! Lame eyebrow.