Today ended up being the worst day of all.
Are you all sick of me yet?
I sure am.
I can't even look at myself anymore. A good friend that has been thru something similar told me to get up every day and put on lipstick. Do my hair.
I really don't care anymore.
Weekends are ok but week days are the worst.
Doctor appointments. Tests. Scan. Needles. Yada Yada
The mask we went to have fitted on Friday is done!
Whoop-de-Freakin-Ding Dong.
My husband has played football and basketball with pain so great it would bring a lesser man down. Not him. They'd throw some novocaine into a pulled hamstring or torn ligament in his knee and back into the game he'd go. Three broken noses his Senior Year in college ball. No big deal.
Claustrophobia is another matter all together. That mask freaks him out! The mask is fitted very tightly to your face then clamped down to the table while your arms are in chains to pull your shoulders away from your neck. Seriously, it looks like a Medieval Torture Chamber.
Today: 8:45 a.m. Home.
I give my husband who has never taken a drug in his life 2 mg of Xanax to relieve his anxiety of the mask.
9:15 a.m. The 4th CaT Scan is scheduled with the dreaded mask to calibrate exactly where the radiation beams will go on the neck. Thy say they will salvage what they can. One salivary gland and maybe a slim chance to salvage the taste buds and voice box and his bottom teeth. His throat will be blasted by radioactive beams 5 days a week for 15 minutes a day for 8 weeks.
9:30 a.m. An IV put into place. Time to put on the mask and get the CT Scan. He panics and refuses.
My heart drops. No mask= No treatment. He will have to wear this mask everyday of the week. 5 days a week for 8 weeks. The Xanax is useless. I coax and plead and cry and beg and bargain with him. He has dug in his heels and says No! OMG.
12:00 p.m. I am exhausted. Myself and three nurses have worn ourselves out but we finally, 2.5 hours later convince him to get the scan with the mask. Thank You Jesus! (How kind and amazing there are to take so much time and energy to CARE)
Claustrophobia sounds lame but it can be so debilitating.
3:00 p.m. First consult with the Chemotherapy Oncologist.
The Pathologist Report.
This damn report has dogged me all weekend and I almost want to burn it right there in the padded ugly purple chair and run like the wind while the ugly chair and the report ignite and are never seen again by mankind or the decorator that chose that ugly ass purple chair.
Chemo will begin after the G-Tube and Chest Port for Chemo are surgically installed. One will Feed and the other will fill my husband's veins with deadly chemicals to kill cells in it's path.
The report again. God, I don't even want to write to you what that ugly thing says.
The secretary of our family doctor was right.
(From this date forward, her name will not ever be mentioned in my house or while I breathe air. She seemed to enjoy telling me that news.) I want to poke her eyes out with a spoon.
The Report........................................
My wonderful kind and gentle husband has not ONE but TWO kinds of cancer.
Yes, ladies and gentlemen, he pulled the very short straw.
We went to tell his 95 year old Mom the bad bad news on Sunday. She at first thought he meant that SHE has cancer (Remember, she does. She has a mass on her lungs but we never told her. Her affairs are in order. At 95 what does it matter really?) It seems that every male in his family has died of cancer. HOW did we not know this before????
He has Stage 4 Squamous Cell Carcinoma of the Throat AND a very rare form of very aggressive Large Cell Neuroendrocrine Cancer. Survival rate is slim.
Now we know and now we fight but for what?
75% chance it will return after treatment.
My fight is dimming. His fight is all but gone. I don't even pretend not to cry anymore. I am so raw and scared and quite frankly I worry that he will suffer and then after 4 months of radiation and the chemo he will be seared and burned and poisoned and THEN he will die. I feel hollow. He talks about when he's dead and gone now. Instructing me on what to do when he is...
I once knew a woman in real life that hated my YouTube Channel so much. She told me I had weird and bizarre people that watched my videos and that it was all very revolting to her. She would post about me on gossip sites and called my own brother to get him to make me stop posting videos. She thought all of my viewers were freaks.
Not So. Not even close. I feel sorry for her closed up mind.
I have found that since being on YouTube, some of the most genuine, thoughtful, caring and most of all loving and giving men and women in the world has ever known!
Today, I have cried tears all day long.
Tonight I cry while typing this to all of YOU. You are so strong and steady and I have been sucking the very souls from all of you and your amazing strength and love you have shown to my husband and to me... perfect strangers. I have never been as blessed as I am right now, in a time of sorrow and fear as I am by each and every one of you.
Let me copy a Tweet for you...
savingsmallbiz
@LanaIndianax Here's today's
hug {{HUG}} The first beautiful flower you see on
your path today is from me ;)
That is just ONE example out of the thousands I have received since this began less than 3 weeks ago. Every day I get notes and comments and letters and messages and warm hugs and LOVE from you. You are all angels here on Earth and I love you more than you know. Thank You.
P. S. I saw her flower today as we walked out of the Oncology building. It had the most beautiful bee buzzing around it. Loving it.
I stood there on the green grass of the perfectly manicured lawn and hugged my husband and cried. See, I never ever took much time in a day to stop and LOOK and see the pretty flowers and what God has given me. Given Us. Maybe God needs a warm and gentle, sweet and caring man in Heaven.
Maybe he will let me keep him.
I need him and I need all of you too. xo